Updated: 09/29/2013 8:47 PM
Created: 09/29/2013 12:57 PM WHEC.com
The Schilling family held a "bounce extravaganza" fundraiser on Sunday in Gates to fight against a rare disease.
Ella Schilling, of Webster, is three years old and was diagnosed with Pitt Hopkins Syndrome at just four months old. She is one of the less than 250 cases of Pitt Hopkins Syndrome (PTHS) that have been diagnosed in the world. PTHS is characterized by physical delays, severe mental retardation and lack of speech. Many children also suffer from seizures and breathing abnormalities.
Sunday's fundraiser was held at Unity Health System Total Sports Experience in Gates. The event featured all types of fun, including a bounce house for kids as well as slides, raffles and crafts.
All of the money raised Sunday will go towards the cause. Ella's parents say she's doing great thanks to all the help and support they've gotten.
If you would like to learn more about Ella, PTHS, and the fundraiser you can click here.