Updated: 04/21/2014 8:36 PM
Created: 04/21/2014 5:57 PM WHEC.com
By: Justin Granit
Mile after mile, Patrick Cutter's runs aren't for faster times on a stop watch. The miles are for more time.
Patrick Cutter said, “It makes you embrace life. They only have so long. It is eye opening. I am thankful they have been around as long as they have.”
They are Jon and Jason Vanderpool, Patrick’s cousins who have Sanfilippo Syndrome. It is a rare genetic disorder that affects motor and speech skills. Life expectancy is up to 20 years old. Jon is 26-years-old and Jason is 22-years-old.
Cutter said, “They love to hug us and run around. They are very energetic.”
Running must be a family thing. The Boston Marathon is a way for Patrick to raise awareness about the disease and money for the Sanfilippo Research Foundation, fittingly based in Boston. The foundation was created by Stuart and Jennifer Siedman. Their son, Ben, died from the disease in February. Grateful for his endeavor, the Siedmans will meet Patrick for the first time on marathon day.
Cutter said, “We are going to meet after the race, so it will be cool to come face to face and talk to them. I am looking forward to that as well.”
This marathon is for remembrance, a time to appreciate every footstep and for Patrick Cutter every second he has with his cousins.
Cutter said, “I don't think anything, at this point, would deter me or anyone else that wants to run the race. It couldn't have been a better year to do this. It is funny how things work out. I am happy to do it this year. I think it is really special.”
Cutter finished in two hours and 58 minutes.
To donate to Patrick's cause and the Sanfilippo Research Foundation, click here.